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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Diwali and cancellation of my Official trip to Delhi.

Every festival in India is celebrated with gaiety . Diwali too is celebrated in all parts of India in different ways. 

Almost all the Hindus clean up their homes , all family members get involved in decorating the house with Rangoli , thoran and diyas . Most Hindus also perform puja to Goddess Lakshmi in the evening .

There was a time when I too would look forward to Diwali , I still do but now there is some nervousness.

It is due to the burning of firecrackers during Diwali. All the towns and cities turn  into gas chambers and the fog worsens the situation as the weather transitions from Rainy season to the Winter season . The environment turns toxic owning to the harmful chemicals used in the making of  these crackers. 

There is a rise in patients getting admitted to hospitals immediately after Diwali with complaints of respiratory issues. Small children and old are the most affected. In spite of the rise in pollution people do not realize the harm that we are causing to ourselves and the planet by burning crackers.  

Glad that in 2016 the Supreme Court had banned the burning of crackers in Delhi . But, how many heed to the order. Every day some of the News Channels display the pollution levels in the bigger towns and cities in the Country. This year it is learnt that Crackers are already illegally stocked up by the traders in spite of the ban . They will find numerous discreet ways to sell their wares.

I am allergic to dust and all kinds of smoke. I do my best to avoid such environments.This year Diwali is being celebrated on 19 Oct.  I had to cancel my Official trip to Delhi on 23 Oct  for this reason. I cannot take the risk of travelling during this time as the smog in Delhi is very severe and pollution reaches very dangerous levels. Emissions from vehicles, Thermal power plants around Delhi and crop stubble burning around Delhi are the reasons for the severe Smog in Delhi during this part of the year. Add to this all the toxic emissions from burning Fire crackers and you create a recipe for disaster. Delhi turns into the worst polluted city in the world.

Unfortunately , people do not understand and compete with friends and neighbors as to who burns the most crackers. It also pains that the supreme court ban is being  politicized and communal color added 😦

Looking forward to the day when Firecrackers are banned all over the country . High time the manufacturing of these crackers are banned. Hope to celebrate a noiseless , smokeless  and pollution free Diwali in the near future. 

 

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Happy Deepawali !!

 

 

 

 

 

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Consumption of Curcumin / Turmeric, its effect on Body Heat and remedies.

 

Curcumin is definitely helping many patients all over the world in successfully managing Multiple Myeloma .

I have been using Curcumin and Turmeric since 2015.

When I recommended Curcumin to other MM patients/Caregivers , I got a feedback that many were unable to take Curcumin as they were experiencing uncomfortable side effects.

Nose bleeds and  diarrhea seem to be some of the common side effects.

Consumption of Turmeric and its extract Curcumin might increase the body heat in a few people. This in turn results in the above effects.

I would recommend foods like Cucumber  ,  buttermilk etc which cool the body. These foods help in balancing the body heat.

It is equally important that we avoid foods which increase Body Heat. Avoid Oily foods , Cold Drinks, Caffeine , Spicy food .

Everyday, I carry a box to work , that has Cucumber which has been peeled and cut into pieces. I have it as a snack between breakfast and Lunch.

My Cucumber for today 🙂

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I also carry buttermilk , in a bottle , to work everyday.

My advise is to consult an Ayurvedic practitioner rather than losing faith on Curcumin because of the above side effects . These side effects can be easily overcome and managed by simple home remedies and one can realize the benefits of Curcumin.

So , don’t loose heart …. have faith … do your research on the internet… a lot of information on foods that cool the body is available out there on the Internet….and get in touch with an Ayurvedic practitioner.

Stay Coool !


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Taming Multiple Myeloma – A Success Story from UK

Came across this article where a 67 year old woman from UK has successfully tamed Multiple Myeloma.

Dieneke Ferguson, the founder and CEO of https://www.hiddenartshop.co.uk learnt about Curcumin through Margaret’s Blog .

I was very excited when I read that Dieneke Ferguson too , just like me , was also inspired by Margaret’s Blog and started using Curcumin.

Here is the whole story :

How our CEO Dieneke Ferguson beat her incurable cancer through curcumin

Hopefully this news will inspire many others to believe that there is hope and not to give up.

 

 

 

 


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‘Technically cured’ of Multiple Myeloma

I was due for a Bone Marrow Test and it was more than 6 months since I got the last one done. Was busy with several activities  and the test got delayed by one month.When I called my Oncologist for an appointment , he suggested that I also get a General Health Check up done along with the Bone Marrow Test. Been a while since I went for a Health check up.
The package consisted of Cardiac tests, ultra sound of the abdomen, Chem 20 , Urine , Thyroid , Lipid profile ,Bone Mass Density ,  Hepatitis B and C etc

The tests along with the Bone Marrow Test were done last week and the results were out today.

Went directly to the Hospital after work. My Oncologist gave an appointment at 4.30pm. Hubby was already at the Hospital and had picked up all the reports. I quickly opened the Bone Marrow Test report and scanned through the report looking for something like ‘M- spike not seen’ or ‘M-Spike negative’ , but I see ‘Impression:Consistent with Normal marrow’. I deduce that all is Normal and we rush to meet my Oncologist , as it was 4.35pm. I quickly thanked the Almighty.

My Oncologist goes through all the reports and finally says ‘ Meet me after One year’ .

I stare at him as if I wanted him to repeat those precious words again. He then says ‘Its been 5 years since you had the SCT, so Technically you are cured’ .

Woww , these were the words that I was longing to hear.

All the other Reports too were normal except for Osteopoenia.

On our way back hubby was showing me some remedies for Osteopoenia and Strength training is one of them.

Time to do something about this.

Today is one of the most happiest days in my life 🙂

I also sent pics of the Reports to my Ayurvedic Doctor, who was also very eager to know the results. He is very happy too. I would not be in this condition without his medication and treatment.

Thanks to Mother Nature for healing me through Ayurveda.

Feel like sharing my happiness with all my well wishers 🙂

Incidentally, today I also received a Promotion/Elevation at work. It was tough as only 30% of the eligible candidates got selected. The selection is based on the score in the appraisals and the performance in the Interview.

So glad I made it 🙂 .

I need to watch out and not get too stressed at work.Got to continue to follow a healthy diet too , along with exercise.

Love you Zindagi…..


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Multiple Myeloma, Symptoms

Multiple Myeloma is a condition when Plasma cells in the blood start misbehaving. These cells form antibodies , which fight infections. When these plasma cells undergo mutation in the DNA, they develop into antibodies which do not perform their job well and on top of that they do not die. They are supposed to die after doing their job well. This is called apoptosis. Every cell in the body dies after doing its job. When they don”t die and start accumulating in the blood  and inside the Bone marrow the condition is called Multiple Myeloma.

  • Low immunity
  • Anemia
  • Back pain
  • Pain in the feet and legs in general
  • Pain in the lower ribs and also just below the lowest part of the ribs on either side of the body
  • Feeling weak and lethargic
  • Always feeling sleepy or wanting to rest . Waking up early is difficult.
  • Suffering from frequent infections in the throat, stomach etc

These are the usual symptoms and were my symptoms as well , before I was detected with MM.

I always felt very weak. I would find it very difficult to wake up and get out of bed. I always wanted to sleep. I kept dragging myself to work . I was unable to stand for more than 10 minutes while I cooked. My feet would begin to ache and I had to sit down every 10 mins. I met several physicians in the last few decades. I also went for a complete health check up too. All of them recommended Iron supplements for my perennially low Hb count. I always took the course and felt good for a while and soon my symptoms were back. The cycle would repeat.

I frequently suffered from throat infections since I was a child and had to pop in a lot of antibiotics too. I also suffered from bronchitis as I am allergic to dust. This too could be due to low immunity. I kept telling my doctors that I frequently fall ill but none of them suggested any further investigations.

Many times I would be told to get a chest X-ray done as they suspected TB, but the result was always -ve.

I had also met an Ayurvedic doctor who checked my pulse . It is called ‘Nadi pariksha’. He prescribed a lot of medications too and said I was highly stressed and that I should do pranayama and meditate regularly.

My actual problem went undetected for decades.

I suffered a lot when I had my periods. They would always arrive early. Severe cramps ensured that I take a pain killer and was unable to go to work. I hated myself for being a girl :((

One day in 2011 , I slipped on the stairs and had an L5 compression fracture in my spine. My bones had become very weak. A normal healthy individual would not have been affected by that kind of a fall. Don’t know how and why the Orthopedic doctor did not suspect that something else could be wrong. He could have at least told me to get a test for calcium and Vitamin D done. I was told to use a cross shaped device for 3 months to heal my fracture.

Just after I recovered from my fracture , I collapsed and fell sick . I suffered from viral fever, throat and stomach infection simultaneously , started experiencing chills with fever in the evenings. A physician who had a clinic where we lived suggested I get blood transfusion as my Hb was 6 . We then decided to go to Apollo and get a second opinion. The Physician there suspected MM after a few preliminary tests.

A few tests like LFT, RFT and CBP can help in pointing towards MM.

A high ESR because of inflammation in the body. CBC Report gives the ESR value.

A high Serum Creatinine in RFT report.

Serum Globulin in LFT would also be beyond the limit.

Hb would also be low as per CBC report.

These are some of the parameters that can give away MM to a discerning physician.

Further tests including Bome marrow tests Electrophoresis will be done to confirm.

Thanks to Allopathy and Alternative treatments for giving me a second chance. I am actually living a healthier , productive and happier life after my Stem Cell Transplant followed by Ayurvedic treatment and proper diet.

So glad I got a second chance to tread this beautiful planet.

You too can !!

Have faith in the treatments and in yourself.


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Update on my Condition – Multiple Myeloma

It is 3 months since I had my Bone marrow test .My results were -ve , No M-spike was seen.However , my Oncologist wanted me to be back with my CBP , LFT and RPT reports after 3 months. I actually expected he would say  I can come back after one year 🙂 but he didn’t want to take any risk. So I complied. I remember him saying that after 5 years of having the Transplant (Bone marrow Transplant) , I will have to take the Bone Marrow Test once every year. For the past 5 years I have been doing the test every 6 months .

My Hb touched 11 for the first time in decades. The range for a healthy woman as per my report is 11-14. This is an achievement !! A record break !!

Yayyyy !!

My Globulin Serum too is 34 which is well within the range. A bigger achievement !!

He was very happy on seeing the reports 🙂  and exclaimed ‘you are off all medication isn’t it ?!!’.

I said “Yes Doctor, but I am continuing to take Curcumin and I am sure it is helping me “.

It is one year since I stopped chemo and taking only Ayurvedic medication.

He then asked me , “Do you think  people should go for a Bone Marrow Transplant”.

I was confused.

I immediately said “yes,  there is no other option “.

I then reminded him about the advise he gave me , after my Bone Marrow Transplant (in Jan 2011)  , about using “Tinaspora Cordifolia” , to improve my immunity. Later on , it was this advise that motivated me to look for alternative treatments and I finally found the way.

Having started using Curcumin 2 years ago ,followed by good results , I had been very eager to push Curcumin  and I wanted my Oncologist to prescribe Curcumin along with Tinaspora Cordifolia to all his other patients.In fact, I started using Curcumin, two years ago, just when I was advised to go for a second Bone marrow transplant .

The right time had arrived and I blurted out ” Doctor , you can also recommend Curcumin to other patients. I have read a lot on the Internet and it prevents and treats all types of cancers.My ayurvedic doctor gives me Tinaspora Cordifolia too ,along with Curcumin and some other herbs”

He nodded and  I felt relieved that I finally said what I wanted to say :))

It is a delicate situation wherein a patient suggests an Allopathic Doctor to prescribe Ayurvedic Medication to his other patients . I am so glad that my Oncologist is open to try out other forms of treatment and encourages his patients.

Hopefully more patients will benefit and will be encouraged to try ayurveda , the way I did.

My sincere thanks to Dr Kochar, Ayurveda and Dr Suresh , Oncologist.

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My current regimen for Multiple Myeloma

I was diagnosed with Multiple Myeloma in Oct 2011. I Underwent Autologous Stem Cell Transplant in Dec 2011.

I was on Thalidomide from June 2012 to Dec 2014.

In Dec 2014 my plasma cells started increasing and my Oncologist suggested that I go for another Transplant. I was put on Lenolidamide.

After some research on the Internet I started taking Ayurvedic medication. After three months my condition improved.  I met Dr Kochar in Apr 2015 and started taking his medication along with Lenolidamide.

On the advise of my Oncologist , I stopped Lenolidamide in Feb 2016 , as I was in remission.

That was the most miraculous moment in my life 🙂

I continue to take Ayurvedic medication prescribed by Dr Nitin Kochar, Mumbai.

I am currently taking the following Ayurvedic medicines :

Curcumin                                                                                                                                         Ashwagandha                                                                                                                             Tinaspora cordifolia                                                                                                                     Satavari                                                                                                                                           I also take another tablet which is a mix of several herbs.

I also take allopathic supplements like Renerve (Mecobalamin), Antoxid HC (Selenium+Copper+ zinc ) , and a tablet whenever my uric acid levels are on the higher side. I also take Folvite daily.

I fast one day every week.

Exercise is always recommended but I was unable to do any form of exercise all these years as I felt weak. I now feel strong enough to go for a walk . I started going for walks since one month and I am enjoying. I currently walk a distance of 1km in 15 mins, straight after work before I go home.

I do pranayama and meditation along with few simple yogasanas in the morning before I go to work.

I also follow the diet prescribed by Dr Kochar.

keep-smiling

Dr Kochar has put a smile back on my face.

Thank you , Doctor !!