Shutterbug's Blog

Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Update on my condition – Multiple Myeloma

Its been a while since I updated my status wrt Multiple Myeloma. Got the BMA, Electrophoresis and Microglobulin tests done about 10 days ago. The samples are  sent to a lab in Mumbai and it takes 7-10 days for the results to be declared.

Went to the counter in the hospital yesterday, where the Reports are to be collected. The person at the counter took almost half an hour to trace my reports. I was already tense for the last 10 days and the tension was mounting. The moment my Reports were found and handed to us , I quickly grabbed the papers and began scanning for the words ‘M Spike’ or ‘M Band’ . Found the words ‘No M Band is seen’ and heaved a sigh of relief. Quickly thanked the Almighty and then proceeded to meet my Oncologist. He took some time to read all the statistics on my reports and exclaimed ‘Wonderful !!” . Told me to meet after 3 months with my CBP,LFT and RFT reports .

What a relief !!

It’s been 5 years since I underwent an Autologous Stem Cell Transplant.

I sent a msg to my Ayurvedic doctor while we (Hubby and Dad) sat in the hospital canteen.

He was happy and congratulated me .He too had been eagerly waiting for my results.

I am off chemo since last 10 months and taking Ayurvedic medication for the last one and half years. All the credit goes to Dr Nitin for treating me and following up closely on my progress. While he feels that my faith in Ayurveda and following the protocol religiously is helping me. Yes ,ultimately it has to work both ways along with God’s grace ¬†:))

top-of-the-world

Yayy ..time to celebrate !! :)) with a cake :))

 

 

 


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My BMA results

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My Serum Protein Electrophoresis and Beta 2 microglobulin serum results are out.
‘No M band is seen’ in the Electrophoresis test . Yayyy … On seeing these words I immediately say a little prayer thanking Almighty.

The Kappa parameter is on the higher side while the Kappa Lambda ratio is in the normal range.Not to worry as I am confident that Kappa too will be normal soon.
My Oncologist expressed his happiness and we were all ears to listen to what he had to say next.
Said I can take a break from Lenolidamide for another three months. Yayy .
It’s been 3 months since I was told to stop lenolidamide and I need not take it for another three months. I was patiently waiting for exactly this kind of news and had this wish for a long time. Hopefully I will never ever have to take it again.

Every month for the last 16 months I was getting the CBC , LFT AND RFT tests and meeting my Ocologist with the reports. He was closely monitoring me since the relapse in Dec 14 and i was advised to go for a second Stem cell transplant after 3 months. However there was no need to go for it as my M spike was zero in the subsequent tests after the relapse.
This 3 months break is such great news and a great relief.
I feel like screaming and shouting and telling the whole world.
My confidence and belief that my condition can be reversed has come true and quite quickly too.

Informed Dr Nitin , my Ayurvedic doctor , about the results and he too was glad and wanted me to do a writeup on my experience and progress with Ayurvedic medication and Fasting so he can share with his students and others who can benefit.

Will post the writeup here soon.