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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Update on my Condition – Multiple Myeloma

It is 3 months since I had my Bone marrow test .My results were -ve , No M-spike was seen.However , my Oncologist wanted me to be back with my CBP , LFT and RPT reports after 3 months. I actually expected he would say  I can come back after one year 🙂 but he didn’t want to take any risk. So I complied. I remember him saying that after 5 years of having the Transplant (Bone marrow Transplant) , I will have to take the Bone Marrow Test once every year. For the past 5 years I have been doing the test every 6 months .

My Hb touched 11 for the first time in decades. The range for a healthy woman as per my report is 11-14. This is an achievement !! A record break !!

Yayyyy !!

My Globulin Serum too is 34 which is well within the range. A bigger achievement !!

He was very happy on seeing the reports 🙂  and exclaimed ‘you are off all medication isn’t it ?!!’.

I said “Yes Doctor, but I am continuing to take Curcumin and I am sure it is helping me “.

It is one year since I stopped chemo and taking only Ayurvedic medication.

He then asked me , “Do you think  people should go for a Bone Marrow Transplant”.

I was confused.

I immediately said “yes,  there is no other option “.

I then reminded him about the advise he gave me , after my Bone Marrow Transplant (in Jan 2011)  , about using “Tinaspora Cordifolia” , to improve my immunity. Later on , it was this advise that motivated me to look for alternative treatments and I finally found the way.

Having started using Curcumin 2 years ago ,followed by good results , I had been very eager to push Curcumin  and I wanted my Oncologist to prescribe Curcumin along with Tinaspora Cordifolia to all his other patients.In fact, I started using Curcumin, two years ago, just when I was advised to go for a second Bone marrow transplant .

The right time had arrived and I blurted out ” Doctor , you can also recommend Curcumin to other patients. I have read a lot on the Internet and it prevents and treats all types of cancers.My ayurvedic doctor gives me Tinaspora Cordifolia too ,along with Curcumin and some other herbs”

He nodded and  I felt relieved that I finally said what I wanted to say :))

It is a delicate situation wherein a patient suggests an Allopathic Doctor to prescribe Ayurvedic Medication to his other patients . I am so glad that my Oncologist is open to try out other forms of treatment and encourages his patients.

Hopefully more patients will benefit and will be encouraged to try ayurveda , the way I did.

My sincere thanks to Dr Kochar, Ayurveda and Dr Suresh , Oncologist.

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My current regimen for Multiple Myeloma

I was diagnosed with Multiple Myeloma in Oct 2011. I Underwent Autologous Stem Cell Transplant in Dec 2011.

I was on Thalidomide from June 2012 to Dec 2014.

In Dec 2014 my plasma cells started increasing and my Oncologist suggested that I go for another Transplant. I was put on Lenolidamide.

After some research on the Internet I started taking Ayurvedic medication. After three months my condition improved.  I met Dr Kochar in Apr 2015 and started taking his medication along with Lenolidamide.

On the advise of my Oncologist , I stopped Lenolidamide in Feb 2016 , as I was in remission.

That was the most miraculous moment in my life 🙂

I continue to take Ayurvedic medication prescribed by Dr Nitin Kochar, Mumbai.

I am currently taking the following Ayurvedic medicines :

Curcumin                                                                                                                                         Ashwagandha                                                                                                                             Tinaspora cordifolia                                                                                                                     Satavari                                                                                                                                           I also take another tablet which is a mix of several herbs.

I also take allopathic supplements like Renerve (Mecobalamin), Antoxid HC (Selenium+Copper+ zinc ) , and a tablet whenever my uric acid levels are on the higher side. I also take Folvite daily.

I fast one day every week.

Exercise is always recommended but I was unable to do any form of exercise all these years as I felt weak. I now feel strong enough to go for a walk . I started going for walks since one month and I am enjoying. I currently walk a distance of 1km in 15 mins, straight after work before I go home.

I do pranayama and meditation along with few simple yogasanas in the morning before I go to work.

I also follow the diet prescribed by Dr Kochar.

keep-smiling

Dr Kochar has put a smile back on my face.

Thank you , Doctor !!


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Update on my condition – Multiple Myeloma

Its been a while since I updated my status wrt Multiple Myeloma. Got the BMA, Electrophoresis and Microglobulin tests done about 10 days ago. The samples are  sent to a lab in Mumbai and it takes 7-10 days for the results to be declared.

Went to the counter in the hospital yesterday, where the Reports are to be collected. The person at the counter took almost half an hour to trace my reports. I was already tense for the last 10 days and the tension was mounting. The moment my Reports were found and handed to us , I quickly grabbed the papers and began scanning for the words ‘M Spike’ or ‘M Band’ . Found the words ‘No M Band is seen’ and heaved a sigh of relief. Quickly thanked the Almighty and then proceeded to meet my Oncologist. He took some time to read all the statistics on my reports and exclaimed ‘Wonderful !!” . Told me to meet after 3 months with my CBP,LFT and RFT reports .

What a relief !!

It’s been 5 years since I underwent an Autologous Stem Cell Transplant.

I sent a msg to my Ayurvedic doctor while we (Hubby and Dad) sat in the hospital canteen.

He was happy and congratulated me .He too had been eagerly waiting for my results.

I am off chemo since last 10 months and taking Ayurvedic medication for the last one and half years. All the credit goes to Dr Nitin for treating me and following up closely on my progress. While he feels that my faith in Ayurveda and following the protocol religiously is helping me. Yes ,ultimately it has to work both ways along with God’s grace  :))

top-of-the-world

Yayy ..time to celebrate !! :)) with a cake :))

 

 

 


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Increase in Globulin Serum…an Ayurvedic Decoction to put a check on it.

decoction

Its been 6 months since i stopped using Lenangio on the advise of my Oncologist. What a relief that was. Something that i prayed for and was longing for . My Gobulin Serum was normal and MSpike was zero at that time but TLC, Neutrophils were very low and i was beginning to get all infections.

For three months , after stopping Lenangio , my Globulin Serum was in the normal range but for the last three months it has been increasing by .1 every month.

Recently , met my Oncologist with my CBC, LFT and RFT reports and as expected he wanted to start Thalix 50mg. I had this apprehension even before i met my Oncologist. I mentioned the same to my Ayurvedic doctor before i met my Oncologist. My Ayurvedic doctor wanted me to request and take one month time from my Oncologist. He would be giving me another medication which will control those villains in my body.

I expressed the same to my Oncologist and got an extension for one more month. I also told him that my Ayurvedic doctor wanted one month time.

I told my Ayurvedic doctor that i am ready to do anything for stopping Thalix . I also told him that i am ready to go on a fast twice a week. He has now sent me two new medications. One of them to be taken in the form of a decoction.

Keeping my fingers crossed as i have begun the daily ritual of preparing a decoction, from a powder which is a combination several herbs, and consume it before sleeping. The liquid is very very bitter and i have something sweet immediately after gulping the liquid. My ayurvedic doctor tells me that the best way to consume an ayurvedic medication is in the form of a decocotion. Though i would love to pop a pill or capsule any day.

Meanwhile i also came across a lady who is 73 years now and was diagnosed with MM when she was 50yrs. I was curious to know of any tips that she was following and learnt that she meditates a lot.

I have resumed meditation. Have also started going a bit slow at work . I  observed that i was getting anxious at home and work. Am now conscious of the speed and intensity of my thoughts.

I am sure that my next results will reflect lower Levels of Globulin serum and i will surprise my Oncologist 🙂 .

 

 

 


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Moringa Oleifera (Drumstick) Vs Cancer

My Ayurvedic doctor has now included another herb , Moringa Oleifera , popularly known as Drumstick.I will be using Moringa along with other natural herbs to help me combat Multiple Myeloma.

moringa-oleifera-leaves-and-pods

Drumstick is one of the regular veggies used in South Indian cooking. Frequently used in Sambhar and avial 🙂 . Also made into pickle.Tastes yummy once cooked but has a repulsive odour when raw. The leaves too are used in several recipes.

But not many know the powerful medicinal values of this tree. All parts of the tree including leaves, flowers, fruits, bark, roots, gum have medicinal properties.

 

moringa

 

There have been several studies to show the effectiveness of Moringa in killing cancer cells.

Here are a few interesting articles that I found

Want to Stay Cancer Free?
Let This Food do the fighting!

https://www.themoringa.com/articles/cancer-prevention-supporting-treatment

https://www.themoringa.com/articles/cancer-treatment

So , along with Curcumin , Ashwagandha and Neem I am now armed with Moringa to fight and kill the villains in my body 🙂

Do include more Moringa in your diet.

 

~Sarve Janaha Sukhino Bhavantu~

 

 


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Summary of my Journey with Multiple Myeloma

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Here is the writeup that I sent to Dr Nitin, my Ayurvedic doctor for sharing with his students and others. It is a chronological summary of my journey with MM.

Age: 46

Gender: Female

Location: Hyderabad

Diagnosis: Diagnosed with Multiple Myeloma in Oct 2011

Jan 2012: Underwent Autologous Stem Cell Transplant at Apollo Hospital, Hyderabad. Started taking Thalix 50mg initially and later increased to 100mg.

Dec 2014: There was a relapse and my Oncologist advised that I should go for another round of Stem cell transplant after three months i.e. in Apr 2015

He also changed my medication to Lenolidamide 10mg (Chemo drug)

After scouring the Internet I came across a blog by another MM patient , who was using Natural supplements to manage her condition successfully for a decade. I too started taking Haridra, Ashwagandha, Shigru, Punarnava from ‘Himalaya’ brand .Many other bloggers too recommended Curcumin but because I did not know where to get it I began using Turmeric in the form of Haridra from ‘Himalaya’.

I was experimenting with the above. I also informed my Oncologist that I was taking the above medications and he did not have any objection.

In fact he himself had advised me to take Tinaspora cordifolia ( a herb) , after my transplant for improving my immunity.

Apr 2015: Was lucky to get introduced to Dr Nitin Kochar , Mumbai by Dr Gayatri ,MM patient from Delhi when I told her that I was using Turmeric. Met her via a social networking group named ‘Yoddhas’. Started taking Curcumin and Punarnava and followed diet given by Dr Nitin Kochar along with Lenolidamide. Finally I was in professional hands and it was a great relief.

Bone marrow test was done at the end of May 2015 which revealed that MM was in Remission. There was no mention about second time transplant 🙂 . My Oncologist obviously was surprised was happy too.

Oct 2015: Continued taking Curcumin along with Lenolidamide. Bone marrow test was done and my M Spike was zero. Yayyy !!

Feb 2016: My TLC count, neutrophils became very low. The counts were decreasing gradually over the past few months. Started experiencing several infections simultaneously. My Oncologist advised me to stop Lenolidamide. I continued  taking Curcumin , Ashwagandha and other herbs and followed the diet as per Dr Nitin’s advise.

May 2016: Bone marrow test revealed MM in remission  . I have not been taking Lenolidamide for the last 3 months. No more Allopathy.

Currently taking Curcumin , Ashwagandha, Nimbodi, Bavchi during the last 3 months. Have been fasting once a week and taking diet as per Dr Nitins advice.

My Oncologist told me to take a break from medication for another 3 months.

Yayyyy !!

Hopefully this will be a permanent break 🙂

My experience with Fasting : I had never fasted all my life. I was nervous initially. I currently fast once a week. I am not supposed to eat anything till dinner time. I can take tea/coffee two or three times during the day. Only if my stomach rumbles and feel weak I am permitted to eat a fruit. I can manage with three servings of fruits . Only Luke warm water to be taken throughout the day. For dinner I am allowed to take vegetable soup and kichdi (single pot meal cooked with lentils, rice and veggies) . I eagerly look forward to eat the warm bowl of kichdi in the evening and feel grateful for the food. It is a great feeling . I am enjoying my days of fasting. Makes the body feel light. Makes the food during the rest of the days taste great.

I also did my own research on the Internet on the effect of fasting and read that Fasting makes the cells go into repair mode. This period of rest heals the cells and tissues in the body which is very important for a healthy body. I am convinced and surely we can give up food for one day in a week for improving our health. The side effect of Fasting is better health 🙂

On other days too , I follow the Diet given by Dr Nitin. I avoid Sugar, Maida , Milk , Wheat , tur dal and have more of millets , Moong dal , chana dal , veggies , nuts  .

Feeling good , happy and quite comfortable now. Wish to share my miracle with as many as I can so they too can benefit from Ayurveda , Fasting and proper diet.

~Sarve Janaha Sukhino Bhavanthu~


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My BMA results

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My Serum Protein Electrophoresis and Beta 2 microglobulin serum results are out.
‘No M band is seen’ in the Electrophoresis test . Yayyy … On seeing these words I immediately say a little prayer thanking Almighty.

The Kappa parameter is on the higher side while the Kappa Lambda ratio is in the normal range.Not to worry as I am confident that Kappa too will be normal soon.
My Oncologist expressed his happiness and we were all ears to listen to what he had to say next.
Said I can take a break from Lenolidamide for another three months. Yayy .
It’s been 3 months since I was told to stop lenolidamide and I need not take it for another three months. I was patiently waiting for exactly this kind of news and had this wish for a long time. Hopefully I will never ever have to take it again.

Every month for the last 16 months I was getting the CBC , LFT AND RFT tests and meeting my Ocologist with the reports. He was closely monitoring me since the relapse in Dec 14 and i was advised to go for a second Stem cell transplant after 3 months. However there was no need to go for it as my M spike was zero in the subsequent tests after the relapse.
This 3 months break is such great news and a great relief.
I feel like screaming and shouting and telling the whole world.
My confidence and belief that my condition can be reversed has come true and quite quickly too.

Informed Dr Nitin , my Ayurvedic doctor , about the results and he too was glad and wanted me to do a writeup on my experience and progress with Ayurvedic medication and Fasting so he can share with his students and others who can benefit.

Will post the writeup here soon.