Shutterbug's Blog

Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Update on my Condition – Multiple Myeloma

It is 3 months since I had my Bone marrow test .My results were -ve , No M-spike was seen.However , my Oncologist wanted me to be back with my CBP , LFT and RPT reports after 3 months. I actually expected he would say ¬†I can come back after one year ūüôā but he didn’t want to take any risk. So I complied. I remember him saying that after 5 years of having the Transplant (Bone marrow Transplant) , I will have to take the Bone Marrow Test once every year. For the past 5 years I have been doing the test every 6 months .

My Hb touched 11 for the first time in decades. The range for a healthy woman as per my report is 11-14. This is an achievement !! A record break !!

Yayyyy !!

My Globulin Serum too is 34 which is well within the range. A bigger achievement !!

He was very happy on seeing the reports ūüôā ¬†and exclaimed ‘you are off all medication isn’t it ?!!’.

I said “Yes Doctor, but I am continuing to take Curcumin and I am sure it is helping me “.

It is one year since I stopped chemo and taking only Ayurvedic medication.

He then asked me , “Do you think ¬†people should go for a Bone Marrow Transplant”.

I was confused.

I immediately said “yes, ¬†there is no other option “.

I then reminded him about the advise he gave me , after my Bone Marrow Transplant (in Jan 2011) ¬†, about using “Tinaspora Cordifolia” , to improve my immunity. Later on , it was this advise that motivated me to look for alternative treatments and I finally found the way.

Having started using Curcumin 2 years ago ,followed by good results , I had been very eager to push Curcumin  and I wanted my Oncologist to prescribe Curcumin along with Tinaspora Cordifolia to all his other patients.In fact, I started using Curcumin, two years ago, just when I was advised to go for a second Bone marrow transplant .

The right time had arrived and I blurted out ” Doctor , you can also recommend Curcumin to other patients. I have read a lot on the Internet and it prevents and treats all types of cancers.My ayurvedic doctor gives me Tinaspora Cordifolia too ,along with Curcumin and some other herbs”

He nodded and  I felt relieved that I finally said what I wanted to say :))

It is a delicate situation wherein a patient suggests an Allopathic Doctor to prescribe Ayurvedic Medication to his other patients . I am so glad that my Oncologist is open to try out other forms of treatment and encourages his patients.

Hopefully more patients will benefit and will be encouraged to try ayurveda , the way I did.

My sincere thanks to Dr Kochar, Ayurveda and Dr Suresh , Oncologist.

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Allopathy and/or Alternative treatments for Cancer

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Depending on past experience (self or others) , nature of the disease and stage of the disease, people choose Allopathy or  Alternative treatments like Naturopathy, Acupuncture ,Homeopathy, Ayurveda etc.

When the situation is not critical , one can choose Alternative therapies. But when the patient is in a critical stage do not hesitate to go for Allopathic treatment . Get a second or third opinion.Agree Allopathy is expensive but do not take any risk at this point.

When I was first diagnosed with Multiple Myeloma , the thought of Alternative treatments didn’t arise. I was in a state of denial . I didn’t want to accept that I had cancer.I didn’t dare to type the word ‘cancer’ . We immediately took a second opinion and went ahead with Chemo followed by Autologous Stem Cell Transplant (SCT). This was in Jan 2012. It was only after 3 yrs of SCT , when my plasma cells started increasing again that I started scouring the internet for Alternative treatments. By then it was obvious that Chemo is not a permanent solution and comes with a lot of side effects.

Thankfully, I had the hope and confidence that I would find a solution and didn’t give up.

Alternative therapies can be started once Allopathic treatment, ie Chemo/ Radiation/surgery, is done and the patient is in remission. One can also take Alternative treatments simultaneously after consulting experts.

It is strongly advisable to take your Oncologist into confidence when you wish to start Alternative treatments.Don’t ever stop the medication give by your Oncologist.

My strong advice is that you start looking for Alternative therapies as soon as one is diagnosed . The patient or their caretaker can do it.There’s a lot of information on the Internet. ¬†Ignore any negative information.

Read blogs of people who are doing well and cured themselves. The first blog that I came across was margarethealthblogs.com . I was introduced to Curcumin by Margaret.

Watch youtube videos on the methods that several people are adopting to cure cancer.

Join online forums where you can share your problems and you may get some advise.

In India, yoddhas.com is one such forum. They are on facebook too.Feel free to share your concerns.Only when we open up and share , we receive help. It was through this forum that I met some wonderful people who have helped me to be where I am now.

Continue to look for other solutions even if you have started using an Alternative therapy.

Some options are : Juicing, Exercise , Deep breathing , Meditation , Positive thinking , Eliminating foods like sugar , white rice , dairy , maida (all purpose flour) and other acid forming foods in your diet and  include more alkaline foods .

Check your B12, Vitamin D , Calcium, Uric acid levels as often as you can along with other regular tests like CBP, LFT and RFT.

There are a lot of self help books written by those who have successfully battled cancer. Read up and follow them. I have read two inspiring books recently , namely ‘Dying to be me’ by Anita Moorjani and ‘You can heal yourself’ by Louise Hay. Both have healed themselves of cancer and helping a lot of people to heal themselves.There are a lot of videos by them on youtube.

 

¬†‘If you think you can, or think you can’t , you are right’ – Henry Ford¬†

 


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Update on my break from Lenolidamide

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I have been taking Lenolidamide 5mg since Dec 2014 as there was a relapse of Multiple Myeloma.

Thanks to Lenolidamide and Alternative medication , my M spike was zero during two consecutive bone marrow tests done in 2015.

However I started experiencing side effects of Lenolidamide in the form of a drastic drop in the counts of TLC and Neutrophils in Jan 2016.
I also had several infections simultaneously. Sore throat ,stomach upset ( diarrhoea ) , asthma attack, eye infection and UTI.
My oncologist told me to stop lenolidamide for one month. During this one month , ie Feb 2016 , I continued taking Curcumin and other immunity boosting tablets.

Went for the CBP LFT AND RFT tests after one month at the end of Feb 2016. All the counts were back to normal. Got a test done for Vitamin D too and the result was normal .
Met my Oncologist with the reports. He was happy with the counts and told me to come back after 3 weeks with new reports. Told me to discontinue Lenolidamide for this period too.

I am currently taking three 500mg capsules of curcumin three times a day and other immunity boosting tablets two times a day prescribed by my Ayurvedic doctor .

I have been off chemo medication for almost 2 months now. Hope to stay away from chemo forever.

Will go for the next routine test in the last week of March 2016.

Keeping my fingers crossed.