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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Curcumin : Availability and its affordability by Common man

A lot of research has been carried out on the efficacy of Curcumin for treating various types of Cancers. There are several evidences from all over the world that prove the positive results of using Curcumin . Curcumin is being widely used for treating different Cancers. Not just Cancers but various other chronic  illnesses too.

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I have been using Curcumin capsules for Multiple Myeloma ,since last two and half years with good results .  Been off Chemo since more than one and a half years , on the advise of my Oncologist. I get Curcumin supplements from my Ayurvedic Doctor.  Usually patients are recommended a maximum dosage of around 8gm of Curcumin per day whereas I have been taking 3.5 gms of Curcumin per day. A single capsule of Curcumin , from most brands , contains 400mg of Curcumin extract . I take 3 capsules , thrice a day.

There are several brands selling Curcumin ,which can be bought online. Curcumin supplements are expensive and are out of reach to common man .

There is no way that information about  the healing properties of Curcumin  is known to common man. Most may come across unauthenticated self proclaimed healers or quacks who trap patients .

A lot of information is available on the Internet ,which is accessible only to those who are literate and have belief in Alternative treatments.

Most patients simply give up and accept their fate as soon as they are diagnosed.  The family members/caregivers too fall into the trap thinking it is a one way highway to heaven.

India is one of the largest growers of Turmeric, from which Curcumin is extracted. It is good to know that Turmeric/Curcumin is getting exported and is being sold/consumed all over the world for its medicinal properties.. Unfortunately Indians themselves are not aware of the potency of Turmeric. Though Turmeric is used in almost all recipes in most parts of India, the quantity used is very small and due to its low absorb-ability, the benefits are not being exploited. It is mostly being used as a colouring agent rather than for its medicinal properties. However, it is a fact that the number of cancer patients in India is much less compared to other countries due to regular consumption of Turmeric via their diet.

I began using plain Turmeric after reading a blog by one Ms Margaret from Italy. I was inspired by her success story and started taking Turmeric (higher quantities) from my own kitchen . What followed is an exciting journey which I have chronicled in this blog.

Need of the hour is to give wide publicity so that general public is made aware of the potency of Turmeric in preventing and treating this dreadful disease and other chronic diseases too. Quantity of Turmeric has to be increased in our recipes. Not the store bought turmeric powder but that which is prepared at home from the dried Turmeric root. This  would help a lot in prevention of such diseases.

Extraction of Curcumin from Turmeric involves a complex chemical process . Also Curcumin comprises only 5% of the weight of a Turmeric Root.

The government should subsidize Curcumin so that common man can afford.

It pains a lot  when I  hear that a patient has lost the battle .

If only they had the hope to live and not give up,

If only they were aware of Alternative treatments ,

If only they knew about Curcumin,

If only they had faith in the potency of Curcumin,

If only they had access to a good Ayurvedic practitioner,

If only they could afford it,

they would have been well and alive.

Unfortunately there are too many if’s , which is not a good sign. Too many lives lost in spite of having a solution 😦

As of now , I am able to share my experience  through this blog.

I also share my experience via a Whataspp group which has members who are Cancer Patients / caregivers.

My Oncologist is aware that I am using Curcumin . I requested him to suggest Curcumin to his other patients as well. He himself had recommended Tinospora Cordifolia to me after my Stem Cell Transplant , 6 years ago . This is a natural herb which improves immunity and I continue  taking  this .

I also share my experience with others who are eager to listen and are interested in knowing more about my healing experience.

NGOs can help in spreading the information about Turmeric/Curcumin and should also be able to supply Turmeric/Curcumin to patients who cannot afford.

I am looking forward to the day when everyone is aware of the healing properties of Turmeric/Curcumin and is affordable by one and all .

There is simply no reason why so many lives should be lost.

Most important : It is highly recommended to increase the consumption of Turmeric through the diet, thereby  preventing and managing most of the chronic illnesses.

 

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Recipe for Treating Cancer

All of us have come across mails/posts via mails/social media about effective methods to treat Cancer. Being a patient myself and having researched the Internet for a cure , I wanted to share my thoughts on these remedies .

Once a person is diagnosed with cancer and the word spreads , they receive suggestions from family, friends , colleagues and other well wishers about various Alternative treatments.

It is up to the individual to believe in the methods that are being followed by other patients to heal themselves. Once they have faith in these treatments , they can choose from the available options based on their conviction and then follow those particular remedies. There is no single recipe that is suitable or preferred by all.

Several ingredients are available to make a great Recipe to treat Cancer. Here are some that I would like to share from my own experience :

  • Avoid sugar
  • Exercise/Yoga
  • Reduce consumption of carbohaydrates like Maida / All purpose flour .All bakery products to be eliminated from the diet.
  • Avoid acidic foods and increase intake of alkaline foods : More of fruits and vegetables and less of meat , caffeine etc
  • Drinking lemon juice
  • Drinking wheat grass juice
  • Doing pranayama : Systematic Deep breathing
  • Meditate
  • Take Herbal supplements like ashwagandha and curcumin (very effective)
  • Eat lots of immunity boosting foods.
  • Reduce stress
  • Getting more of the sunshine vitamin (vitamin D) : check your Vitamin D levels and take supplements as advised by your physician and increase your exposure to the sun.
  • Check your Vitamin B12 levels and take supplements if required.
  • Include probiotics : Include Curd / Yoghurt in the diet
  • Juicing
  • Fasting
  • Replace refined oils with cold pressed oils
  • Use clarified butter . Also known as Ghee . Cow Ghee is the best.
  • Avoid all processed foods.
  • Stop drinking and smoking.
  • Respect every Cell and Organ in your body .
  • Forgive yourself , forgive others, love yourself.
  • Learn to say NO.
  • Pursue a hobby.
  • Read success stories on the Internet.
  • Subscribe to some motivational and fun stuff on various social media on the Internet.
  • Be Grateful for what you are blessed with.

Choose from the above as per your convenience and belief. Read up on the Internet about those which appeal to you. Follow the method strictly.

Continue your Chemo medication along with the above.

I have been doing my best to follow all the above.

It is all about maintaining a Healthy Body and Mind by eliminating foods that feed Cancer cells and including foods that help in the Apoptosis (destruction) of the Cancer cells.

Have faith and hope that you will get healed.

And Lo ! you will get healed.

With all the available methods there is no reason why any form of cancer cannot be eliminated from this planet. There is absolutely no reason why anyone should lose the battle.

 

“If you think you can or you think you can’t , you are always Right – Henry Ford “.

 

 


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Update on my Condition – Multiple Myeloma

It is 3 months since I had my Bone marrow test .My results were -ve , No M-spike was seen.However , my Oncologist wanted me to be back with my CBP , LFT and RPT reports after 3 months. I actually expected he would say  I can come back after one year 🙂 but he didn’t want to take any risk. So I complied. I remember him saying that after 5 years of having the Transplant (Bone marrow Transplant) , I will have to take the Bone Marrow Test once every year. For the past 5 years I have been doing the test every 6 months .

My Hb touched 11 for the first time in decades. The range for a healthy woman as per my report is 11-14. This is an achievement !! A record break !!

Yayyyy !!

My Globulin Serum too is 34 which is well within the range. A bigger achievement !!

He was very happy on seeing the reports 🙂  and exclaimed ‘you are off all medication isn’t it ?!!’.

I said “Yes Doctor, but I am continuing to take Curcumin and I am sure it is helping me “.

It is one year since I stopped chemo and taking only Ayurvedic medication.

He then asked me , “Do you think  people should go for a Bone Marrow Transplant”.

I was confused.

I immediately said “yes,  there is no other option “.

I then reminded him about the advise he gave me , after my Bone Marrow Transplant (in Jan 2011)  , about using “Tinaspora Cordifolia” , to improve my immunity. Later on , it was this advise that motivated me to look for alternative treatments and I finally found the way.

Having started using Curcumin 2 years ago ,followed by good results , I had been very eager to push Curcumin  and I wanted my Oncologist to prescribe Curcumin along with Tinaspora Cordifolia to all his other patients.In fact, I started using Curcumin, two years ago, just when I was advised to go for a second Bone marrow transplant .

The right time had arrived and I blurted out ” Doctor , you can also recommend Curcumin to other patients. I have read a lot on the Internet and it prevents and treats all types of cancers.My ayurvedic doctor gives me Tinaspora Cordifolia too ,along with Curcumin and some other herbs”

He nodded and  I felt relieved that I finally said what I wanted to say :))

It is a delicate situation wherein a patient suggests an Allopathic Doctor to prescribe Ayurvedic Medication to his other patients . I am so glad that my Oncologist is open to try out other forms of treatment and encourages his patients.

Hopefully more patients will benefit and will be encouraged to try ayurveda , the way I did.

My sincere thanks to Dr Kochar, Ayurveda and Dr Suresh , Oncologist.

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Allopathy and/or Alternative treatments for Cancer

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Depending on past experience (self or others) , nature of the disease and stage of the disease, people choose Allopathy or  Alternative treatments like Naturopathy, Acupuncture ,Homeopathy, Ayurveda etc.

When the situation is not critical , one can choose Alternative therapies. But when the patient is in a critical stage do not hesitate to go for Allopathic treatment . Get a second or third opinion.Agree Allopathy is expensive but do not take any risk at this point.

When I was first diagnosed with Multiple Myeloma , the thought of Alternative treatments didn’t arise. I was in a state of denial . I didn’t want to accept that I had cancer.I didn’t dare to type the word ‘cancer’ . We immediately took a second opinion and went ahead with Chemo followed by Autologous Stem Cell Transplant (SCT). This was in Jan 2012. It was only after 3 yrs of SCT , when my plasma cells started increasing again that I started scouring the internet for Alternative treatments. By then it was obvious that Chemo is not a permanent solution and comes with a lot of side effects.

Thankfully, I had the hope and confidence that I would find a solution and didn’t give up.

Alternative therapies can be started once Allopathic treatment, ie Chemo/ Radiation/surgery, is done and the patient is in remission. One can also take Alternative treatments simultaneously after consulting experts.

It is strongly advisable to take your Oncologist into confidence when you wish to start Alternative treatments.Don’t ever stop the medication give by your Oncologist.

My strong advice is that you start looking for Alternative therapies as soon as one is diagnosed . The patient or their caretaker can do it.There’s a lot of information on the Internet.  Ignore any negative information.

Read blogs of people who are doing well and cured themselves. The first blog that I came across was margarethealthblogs.com . I was introduced to Curcumin by Margaret.

Watch youtube videos on the methods that several people are adopting to cure cancer.

Join online forums where you can share your problems and you may get some advise.

In India, yoddhas.com is one such forum. They are on facebook too.Feel free to share your concerns.Only when we open up and share , we receive help. It was through this forum that I met some wonderful people who have helped me to be where I am now.

Continue to look for other solutions even if you have started using an Alternative therapy.

Some options are : Juicing, Exercise , Deep breathing , Meditation , Positive thinking , Eliminating foods like sugar , white rice , dairy , maida (all purpose flour) and other acid forming foods in your diet and  include more alkaline foods .

Check your B12, Vitamin D , Calcium, Uric acid levels as often as you can along with other regular tests like CBP, LFT and RFT.

There are a lot of self help books written by those who have successfully battled cancer. Read up and follow them. I have read two inspiring books recently , namely ‘Dying to be me’ by Anita Moorjani and ‘You can heal yourself’ by Louise Hay. Both have healed themselves of cancer and helping a lot of people to heal themselves.There are a lot of videos by them on youtube.

 

 ‘If you think you can, or think you can’t , you are right’ – Henry Ford 

 


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Update on my break from Lenolidamide

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I have been taking Lenolidamide 5mg since Dec 2014 as there was a relapse of Multiple Myeloma.

Thanks to Lenolidamide and Alternative medication , my M spike was zero during two consecutive bone marrow tests done in 2015.

However I started experiencing side effects of Lenolidamide in the form of a drastic drop in the counts of TLC and Neutrophils in Jan 2016.
I also had several infections simultaneously. Sore throat ,stomach upset ( diarrhoea ) , asthma attack, eye infection and UTI.
My oncologist told me to stop lenolidamide for one month. During this one month , ie Feb 2016 , I continued taking Curcumin and other immunity boosting tablets.

Went for the CBP LFT AND RFT tests after one month at the end of Feb 2016. All the counts were back to normal. Got a test done for Vitamin D too and the result was normal .
Met my Oncologist with the reports. He was happy with the counts and told me to come back after 3 weeks with new reports. Told me to discontinue Lenolidamide for this period too.

I am currently taking three 500mg capsules of curcumin three times a day and other immunity boosting tablets two times a day prescribed by my Ayurvedic doctor .

I have been off chemo medication for almost 2 months now. Hope to stay away from chemo forever.

Will go for the next routine test in the last week of March 2016.

Keeping my fingers crossed.