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Living with Multiple Myeloma in Hyderabad , India . Random musings .


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Diwali and cancellation of my Official trip to Delhi.

Every festival in India is celebrated with gaiety . Diwali too is celebrated in all parts of India in different ways. 

Almost all the Hindus clean up their homes , all family members get involved in decorating the house with Rangoli , thoran and diyas . Most Hindus also perform puja to Goddess Lakshmi in the evening .

There was a time when I too would look forward to Diwali , I still do but now there is some nervousness.

It is due to the burning of firecrackers during Diwali. All the towns and cities turn  into gas chambers and the fog worsens the situation as the weather transitions from Rainy season to the Winter season . The environment turns toxic owning to the harmful chemicals used in the making of  these crackers. 

There is a rise in patients getting admitted to hospitals immediately after Diwali with complaints of respiratory issues. Small children and old are the most affected. In spite of the rise in pollution people do not realize the harm that we are causing to ourselves and the planet by burning crackers.  

Glad that in 2016 the Supreme Court had banned the burning of crackers in Delhi . But, how many heed to the order. Every day some of the News Channels display the pollution levels in the bigger towns and cities in the Country. This year it is learnt that Crackers are already illegally stocked up by the traders in spite of the ban . They will find numerous discreet ways to sell their wares.

I am allergic to dust and all kinds of smoke. I do my best to avoid such environments.This year Diwali is being celebrated on 19 Oct.  I had to cancel my Official trip to Delhi on 23 Oct  for this reason. I cannot take the risk of travelling during this time as the smog in Delhi is very severe and pollution reaches very dangerous levels. Emissions from vehicles, Thermal power plants around Delhi and crop stubble burning around Delhi are the reasons for the severe Smog in Delhi during this part of the year. Add to this all the toxic emissions from burning Fire crackers and you create a recipe for disaster. Delhi turns into the worst polluted city in the world.

Unfortunately , people do not understand and compete with friends and neighbors as to who burns the most crackers. It also pains that the supreme court ban is being  politicized and communal color added 😦

Looking forward to the day when Firecrackers are banned all over the country . High time the manufacturing of these crackers are banned. Hope to celebrate a noiseless , smokeless  and pollution free Diwali in the near future. 

 

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Happy Deepawali !!

 

 

 

 

 

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Down with Sore Throat 

Was down with severe Throat infection in the last few days.This is the result of my recent visit to a supermarket. I had also visited a clothes  exhibition a couple of weeks ago without a mask. I have always been allergic to dust. The reason I usually avoid Malls, supermarkets and clothes stores. I usually wear a mask when I visit these places.I didn’t have a mask this time and very confidently entered this supermarket on my way back home. Within two days I began seeing symptoms of a Bronchitis attack and a sore throat. I started drinking warm water with turmeric to soothe my throat. But I failed this time  . It got severe by midnight and I was forced to pop an antibiotic.

Visited my ENT doctor next evening . I have completed the course and almost back to normal today.

Had to apply leave at work. Luckily we have a loong weekend along with a holiday for Dasara and Gandhi Jayanti .I will be back to work fresh and more energetic.

Each time after I recover I tell myself that I will never go to Public dusty places without a mask and I invariably end up at such places in a few months.

 


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Consumption of Curcumin / Turmeric, its effect on Body Heat and remedies.

 

Curcumin is definitely helping many patients all over the world in successfully managing Multiple Myeloma .

I have been using Curcumin and Turmeric since 2015.

When I recommended Curcumin to other MM patients/Caregivers , I got a feedback that many were unable to take Curcumin as they were experiencing uncomfortable side effects.

Nose bleeds and  diarrhea seem to be some of the common side effects.

Consumption of Turmeric and its extract Curcumin might increase the body heat in a few people. This in turn results in the above effects.

I would recommend foods like Cucumber  ,  buttermilk etc which cool the body. These foods help in balancing the body heat.

It is equally important that we avoid foods which increase Body Heat. Avoid Oily foods , Cold Drinks, Caffeine , Spicy food .

Everyday, I carry a box to work , that has Cucumber which has been peeled and cut into pieces. I have it as a snack between breakfast and Lunch.

My Cucumber for today 🙂

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I also carry buttermilk , in a bottle , to work everyday.

My advise is to consult an Ayurvedic practitioner rather than losing faith on Curcumin because of the above side effects . These side effects can be easily overcome and managed by simple home remedies and one can realize the benefits of Curcumin.

So , don’t loose heart …. have faith … do your research on the internet… a lot of information on foods that cool the body is available out there on the Internet….and get in touch with an Ayurvedic practitioner.

Stay Coool !


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Taming Multiple Myeloma – A Success Story from UK

Came across this article where a 67 year old woman from UK has successfully tamed Multiple Myeloma.

Dieneke Ferguson, the founder and CEO of https://www.hiddenartshop.co.uk learnt about Curcumin through Margaret’s Blog .

I was very excited when I read that Dieneke Ferguson too , just like me , was also inspired by Margaret’s Blog and started using Curcumin.

Here is the whole story :

How our CEO Dieneke Ferguson beat her incurable cancer through curcumin

Hopefully this news will inspire many others to believe that there is hope and not to give up.

 

 

 

 


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‘Technically cured’ of Multiple Myeloma

I was due for a Bone Marrow Test and it was more than 6 months since I got the last one done. Was busy with several activities  and the test got delayed by one month.When I called my Oncologist for an appointment , he suggested that I also get a General Health Check up done along with the Bone Marrow Test. Been a while since I went for a Health check up.
The package consisted of Cardiac tests, ultra sound of the abdomen, Chem 20 , Urine , Thyroid , Lipid profile ,Bone Mass Density ,  Hepatitis B and C etc

The tests along with the Bone Marrow Test were done last week and the results were out today.

Went directly to the Hospital after work. My Oncologist gave an appointment at 4.30pm. Hubby was already at the Hospital and had picked up all the reports. I quickly opened the Bone Marrow Test report and scanned through the report looking for something like ‘M- spike not seen’ or ‘M-Spike negative’ , but I see ‘Impression:Consistent with Normal marrow’. I deduce that all is Normal and we rush to meet my Oncologist , as it was 4.35pm. I quickly thanked the Almighty.

My Oncologist goes through all the reports and finally says ‘ Meet me after One year’ .

I stare at him as if I wanted him to repeat those precious words again. He then says ‘Its been 5 years since you had the SCT, so Technically you are cured’ .

Woww , these were the words that I was longing to hear.

All the other Reports too were normal except for Osteopoenia.

On our way back hubby was showing me some remedies for Osteopoenia and Strength training is one of them.

Time to do something about this.

Today is one of the most happiest days in my life 🙂

I also sent pics of the Reports to my Ayurvedic Doctor, who was also very eager to know the results. He is very happy too. I would not be in this condition without his medication and treatment.

Thanks to Mother Nature for healing me through Ayurveda.

Feel like sharing my happiness with all my well wishers 🙂

Incidentally, today I also received a Promotion/Elevation at work. It was tough as only 30% of the eligible candidates got selected. The selection is based on the score in the appraisals and the performance in the Interview.

So glad I made it 🙂 .

I need to watch out and not get too stressed at work.Got to continue to follow a healthy diet too , along with exercise.

Love you Zindagi…..


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Treat Cancer – Yes, you can !

I had been diagnosed with Multiple Myeloma ( a form of Blood Cancer) Five and half years ago.

I have come across many articles on how to ‘Manage’ the condition.

Here is nice compilation that I received from a WhatsApp group .

I do believe and have been practicing most of what is recommended in this compilation and hence wanted to share.

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AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY (‘TRY’, BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY .. 
Cancer Update from Johns Hopkins: 

1. Every person has cancer cells in the body.. These cancer cells do not show up in the standard tests until they have multiplied to a few billion. When doctors tell cancer patients that there are no more cancer cells in their bodies after treatment, it just means the tests are unable to detect the cancer cells because they have not reached the detectable size. 

2. Cancer cells occur between 6 to more than 10 times in a person’s lifetime. 

3. When the person’s immune system is strong the cancer cells will be destroyed and prevented from multiplying and forming tumors. 

4. When a person has cancer it indicates the person has nutritional deficiencies. These could be due to genetic, but also to environmental, food and lifestyle factors. 

5. To overcome the multiple nutritional deficiencies, changing diet to eat more adequately and healthy, 4-5 times/day and by including supplements will strengthen the immune system. 

6. Chemotherapy involves poisoning the rapidly-growing cancer cells and also destroys rapidly-growing healthy cells in the bone marrow, gastrointestinal tract etc., and can cause organ damage, like liver, kidneys, heart, lungs etc. 

7. Radiation while destroying cancer cells also burns, scars and damages healthy cells, tissues and organs. 

8. Initial treatment with chemotherapy and radiation will often reduce tumor size.However prolonged use of chemotherapy and radiation do not result in more tumor destruction. 

9. When the body has too much toxic burden from chemotherapy and radiation the immune system is either compromised or destroyed, hence the person can succumb to various kinds of infections and complications. 

10. Chemotherapy and radiation can cause cancer cells to mutate and become resistant and difficult to destroy. Surgery can also cause cancer cells to spread to other sites.

11. An effective way to battle cancer is to starve the cancer cells by not feeding it with the foods it needs to multiply. 
*CANCER CELLS FEED ON: 
a. Sugar substitutes like NutraSweet, Equal, Spoonful, etc. are made with Aspartame and it is harmful. A better natural substitute would be Manuka honey or molasses, but only in very small amounts. Table salt has a chemical added to make it white in color . Better alternative is Bragg’s aminos or sea salt. 
b. Milk causes the body to produce mucus, especially in the gastro-intestinal tract. Cancer feeds on mucus.. By cutting off milk and substituting with unsweetened soy milk, cancer cells are being starved. 
c. Cancer cells thrive in an acid environment. A meat-based diet is acidic. Meat also contains livestock antibiotics, growth hormones and parasites, which are all harmful, especially to people with cancer. 
d.. A diet made of 80% fresh vegetables and juice, whole grains, seeds, nuts and a little fruits help put the body into an alkaline environment. About 20% can be from cooked food including beans. Fresh vegetable juices provide live enzymes that are easily absorbed and reach down to cellular levels within 15 minutes to nourish and enhance growth of healthy cells. To obtain live enzymes for building healthy cells try and drink fresh vegetable juice (most vegetables including bean sprouts) and eat some raw vegetables 2 or 3 times a day. Enzymes are destroyed at temperatures of 104 degrees F (40 degrees C).. 
e. Avoid coffee, tea, and chocolate, which have high caffeine. Green tea is a better alternative and has cancer fighting properties. Water-best to drink purified water, or filtered, to avoid known toxins and heavy metals in tap water. Distilled water is acidic, avoid it. 

12. Meat protein is difficult to digest and requires a lot of digestive enzymes. Undigested meat remaining in the intestines becomes putrefied and leads to more toxic buildup. 

13. Cancer cell walls have a tough protein covering. By refraining from meat it frees more enzymes to attack the protein walls of cancer cells and allows the body’s killer cells to destroy the cancer cells. 

14. Some supplements build up the immune system.

(IP6, Flor-essence , Essiac, anti-oxidants, vitamins, minerals, EFAs etc.) to enable the body’s own killer cells to destroy cancer cells.. Other supplements like vitamin E are known to cause apoptosis, or programmed cell death, the body’s normal method of disposing of damaged, unwanted, or unneeded cells. 
15. Cancer is a disease of the mind, body, and spirit.A proactive and positive spirit will help the cancer warrior be a survivor.Anger, unforgiveness and bitterness put the body into a stressful and acidic environment. Be a forgiving spirit. Learn to relax and enjoy life.

16. Cancer cells cannot thrive in an oxygenated environment. Exercising daily, and deep breathing help to get more oxygen down to the cellular level. Oxygen therapy is another means employed to destroy cancer cells.

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Please share the above with those who can benefit.


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Multiple Myeloma, Symptoms

Multiple Myeloma is a condition when Plasma cells in the blood start misbehaving. These cells form antibodies , which fight infections. When these plasma cells undergo mutation in the DNA, they develop into antibodies which do not perform their job well and on top of that they do not die. They are supposed to die after doing their job well. This is called apoptosis. Every cell in the body dies after doing its job. When they don”t die and start accumulating in the blood  and inside the Bone marrow the condition is called Multiple Myeloma.

  • Low immunity
  • Anemia
  • Back pain
  • Pain in the feet and legs in general
  • Pain in the lower ribs and also just below the lowest part of the ribs on either side of the body
  • Feeling weak and lethargic
  • Always feeling sleepy or wanting to rest . Waking up early is difficult.
  • Suffering from frequent infections in the throat, stomach etc

These are the usual symptoms and were my symptoms as well , before I was detected with MM.

I always felt very weak. I would find it very difficult to wake up and get out of bed. I always wanted to sleep. I kept dragging myself to work . I was unable to stand for more than 10 minutes while I cooked. My feet would begin to ache and I had to sit down every 10 mins. I met several physicians in the last few decades. I also went for a complete health check up too. All of them recommended Iron supplements for my perennially low Hb count. I always took the course and felt good for a while and soon my symptoms were back. The cycle would repeat.

I frequently suffered from throat infections since I was a child and had to pop in a lot of antibiotics too. I also suffered from bronchitis as I am allergic to dust. This too could be due to low immunity. I kept telling my doctors that I frequently fall ill but none of them suggested any further investigations.

Many times I would be told to get a chest X-ray done as they suspected TB, but the result was always -ve.

I had also met an Ayurvedic doctor who checked my pulse . It is called ‘Nadi pariksha’. He prescribed a lot of medications too and said I was highly stressed and that I should do pranayama and meditate regularly.

My actual problem went undetected for decades.

I suffered a lot when I had my periods. They would always arrive early. Severe cramps ensured that I take a pain killer and was unable to go to work. I hated myself for being a girl :((

One day in 2011 , I slipped on the stairs and had an L5 compression fracture in my spine. My bones had become very weak. A normal healthy individual would not have been affected by that kind of a fall. Don’t know how and why the Orthopedic doctor did not suspect that something else could be wrong. He could have at least told me to get a test for calcium and Vitamin D done. I was told to use a cross shaped device for 3 months to heal my fracture.

Just after I recovered from my fracture , I collapsed and fell sick . I suffered from viral fever, throat and stomach infection simultaneously , started experiencing chills with fever in the evenings. A physician who had a clinic where we lived suggested I get blood transfusion as my Hb was 6 . We then decided to go to Apollo and get a second opinion. The Physician there suspected MM after a few preliminary tests.

A few tests like LFT, RFT and CBP can help in pointing towards MM.

A high ESR because of inflammation in the body. CBC Report gives the ESR value.

A high Serum Creatinine in RFT report.

Serum Globulin in LFT would also be beyond the limit.

Hb would also be low as per CBC report.

These are some of the parameters that can give away MM to a discerning physician.

Further tests including Bome marrow tests Electrophoresis will be done to confirm.

Thanks to Allopathy and Alternative treatments for giving me a second chance. I am actually living a healthier , productive and happier life after my Stem Cell Transplant followed by Ayurvedic treatment and proper diet.

So glad I got a second chance to tread this beautiful planet.

You too can !!

Have faith in the treatments and in yourself.